Wayne Eskridge posted End of life care - Do you care what it is like to Caregiver's Blog = what is it really like = this is a member blog join us and tell your story 2017-02-26 08:56:28 -0700
I thought hospice was supposed to make him comfortableSee all posts or If you are a caregiver tell us your story
Posted by · February 10, 2018 8:09 AM · 2 reactions
MURRAY — For five years, Wayne Eskridge carried the same photo.
It wasn't a picture of a loved one. It was a picture of his liver.
Back in 2010, a surgeon went in to remove Eskridge's gallbladder and came out with bad news: He was sure Eskridge had stage 4 liver disease.
This came as a shock. Eskridge, 73, didn't drink. He had no symptoms of liver disease. In fact, the semiretired Boise engineer had hardly ever been sick.
In the weeks and months to pass, doctors performed blood tests, genetic tests and two liver biopsies, which provided conflicting information. One suggested his liver was healthy. Another said his liver was severely scarred. The bloodwork indicated that nothing was wrong, but then a hematologist diagnosed him hemochromatosis — too much iron in his blood.Read more
In 2014 I was diagnosed with stage 4 liver cirrhosis. I had no symptoms, felt pretty good for a 71 year old guy and I was optimistic about the future. I didn't drink, I'd never had hepatitis C. I was one of the growing number of Americans with NASH, non-alcoholic steatohepatitis. The reasons for it are not fully understood, but there is no cure, short of a liver transplant.
My dad, who died a decade ago, had liver disease, so I knew that this is one nasty way to go. For the first time in my life, I fell into the ugly beast of depression.
You can read the original story here
A few months after my diagnosis, when my spirits had reached rock bottom, my 91-year-old mother asked me and my sister to go with her to see an oncologist. She had been coughing a little and a scan showed a suspicious mass in her lung which had been biopsied.
The doctor was calm and supportive as he explained stage 4 non-small cell carcinoma. Sadly no, not operable. How long would she have? Hard to say. Probably not too long. Chemo is really hard on older people, he told us. Think about the quality of life.Read more
There is a lot of opinion about coffee but real research is coming in so what does it say.A:
The pooled results of the meta-analysis indicated that coffee consumers were less likely to develop cirrhosis compared with those who do not consume coffee. For low or moderate coffee consumption versus no consumption hepatic cirrhosis was reduced. Additionally high coffee consumption could also significantly reduce the risk for hepatic cirrhosis when compared with no coffee consumption. The effect of coffee consumption on hepatic fibrosis was summarized as well. Hepatic fibrosis for coffee consumption versus no consumption was significantly protective. The protective effect of coffee on hepatic fibrosis and cirrhosis was also identified in subgroups of patients with alcoholic liver disease and chronic hepatitis C virus (HCV) infection.
Coffee consumption can significantly reduce the risk for hepatic fibrosis and cirrhosis. Here is a link to the study.
There is also research which shows that how coffee is brewed. It is important to use a paper filter to eliminate some harmful substances. This link is to that research for those who want the detail.
This discussion focuses on fructose and why it is a real enemy of your liver so think high fructose corn syrup. The little secret is that table sugar is 50% fructose so it is not just calories that we are concerned about.A:
Fructose, or fruit sugar, is a simple ketonic monosaccharide found in many plants, where it is often bonded to glucose to form the disaccharide sucrose. It is one of the three dietary monosaccharides, along with glucose and galactose, that are absorbed directly into the bloodstream during digestion. Fructose is a very sweet, white, odorless, crystalline solid and is the most water-soluble of all the sugars. Fructose is found in honey, tree and vine fruits, flowers, berries, and most root vegetables. Excessive fructose consumption is a cause of diabetes, obesity, elevated LDL cholesterol and triglycerides, leading to metabolic syndrome, type 2 diabetes and cardiovascular disease, and fatty liver.
Wayne Eskridge posted about Monsanto’s Roundup linked to fatty liver disease on Facebook 2017-01-15 14:32:29 -0700Monsanto’s Roundup linked to fatty liver disease
The concern over wide spread chemicals such as RoundUp continues. Of interest to this community is evidence that very low levels can cause fatty liver disease. You can read about the research at the link.
Wayne Eskridge commented on NASH Diet 2018-11-25 10:04:53 -0700Hi Misty
Multiple questions there. People can have a wide variety of bio-chemistries so there is no one diet fits all, but as you think about nutrition, it is good to keep the basics in mind. If you are concerned about liver health the first question is what food is easiest for the liver to manage. Keep in mind that over 50% of the energy used by the body is fat. The heart, as just one example, burns only fat. All low-fat diets force the liver to convert sugars into fats. Is that your goal? Keto forces the liver to manufacture ketones for the brain. Is that of concern? One place to start might be to read about how the body actually processes fats. You might start here as just one suggestion.
There are passionate advocates for all kinds of diets. If the science we rely on to support our approach is of interest you can start here to study that.
You may have some nutrition concern that pushes you in a different direction but go there based upon research if you can. Our message is whatever approach you take work your liver as little as possible if you have a liver disease.
If you want to really understand Fatty Liver Disease, spend some time watching the videos below. They present a great deal of information, but if knowledge is your goal, this is a great place to start.
Part of dealing with liver disease is to understand it. In order to help you, we are working with Armando Hasudungan who produces superb short videos to explain complex medical subjects. We use them throughout the site to help you understand your body and specifically your liver. The first video gives you a view of the liver overall and the following ones focus on details.
So how does what I eat cause me problems?
OK, but how does Cirrhosis happen?
So what is cirrhosis that is the one that scares me.
I suppose the next question is what are the signs and symptoms and management of liver disease.
Darn, so how bad can it be really?
Causes part 1
Causes part 2
Wayne Eskridge commented on HOME 2019-02-06 18:00:00 -0700Regarding lecithin, There are arguments both ways on it. Lecithin is a common part of plants. Much of the supplements available are made from soybeans so you do get it from a plant based diet. It is an emulsifier so it conceptually aids fat digestion but that also says to use it with meals. There are also some studies suggest that excess lecithin can be digested by bowel bacteria to form TMAO which is considered by many to be a cardiovascular problem. We are not doctors so we suggest discussing it with a qualified professional.
Wayne Eskridge posted about Newsletter Sign-Up on Facebook 2017-01-13 16:15:32 -0700I invite you to check out the Fatty Liver Foundation I just joined
Our principle focus is Fatty Liver, Non-Alcoholic Fatty Liver Disease (NAFLD) and Non-Alcoholic Steatohepetitis (NASH).
We're not here to sell you anything. Through personal experience with liver disease, we've learned that information is power. FLF, a non-profit foundation, is dedicated to helping people better understand fat in the liver, why it can kills you, and how to deal with it.
By becoming a member, you are signing up to receive our email newsletter. Membership is free, but we do depend on public support and donations of any size are greatly appreciated.
Wayne Eskridge published Reversal of cirrhosis may be possible - a personal report from the battle in Voices - our blog 2017-01-13 14:39:11 -0700
For those who have followed my musings along the way, I thought you might find some value in an update. A brief review. I happen to be under the care of a hepatologist who began his career in Europe. There is a lot of discussion of the so called mediteranian diet which includes olive oil but the standards of care are silent on the use of olive oil as a primary component of treating fibrotic liver disease. In my journal I've provided fairly detailed descriptions of my personal diet which includes 1/4 cup of extra virgin olive oil per day.Read more
So, I've been doing this for a year now and it is fair to ask if there are any results. I'm happy to report that I recently had my second Fibroscan test. The results, in 2015 my reading was 21.5 well into the cirrhotic range. Today it is 14.3 near the bottom of the stage 4 range..
Wayne Eskridge published physicians need to learn more about healthy eating in Voices - our blog 2017-01-02 15:33:17 -0700
Most primary care doctors find it relatively easy to talk with their patients about topics like depression or cancer. Yet many shy away from talking about nutrition, or find it difficult to do. Avoiding that conversation is costly.
For someone with diabetes, it may mean the difference between losing a foot or keeping it. For someone with heart disease, that conversation could free them from workplace disability or empower them to work harder. For someone who is steadily gaining weight, it could save them from gastric bypass surgery or from a lifetime of medications to treat obesity and weight-related complications.
Many people blame lack of willpower for gaining weight. According to the University of Chicago, consumers say that willpower is their No. 1 barrier to weight loss. Americans spend $60 billion each year on diet and diet aids, but aren’t much slimmer for it. Close to 70 percent of adults are overweight or obese. Sixty percent are on diets.
An article by Agustina Saenz, MDRead more
Depressed? Take one skydiving granny and call me in the morning.
My mother was diagnosed with lung cancer. Her response "I want to go skydiving" a personal story about dealing with chronic and terminal illness.
The Philadelphia Enquirer picked up the story and did a nice article in their health section.
Wayne Eskridge published The beast in my belly: Living with a chronic liver disease in Voices - our blog 2017-01-01 16:13:43 -0700
This article in the Stanford Medicine blog Scope, talks about a personal journey to stop the progression of cirrhosis through lifestyle changes of diet and exercise.
Wayne Eskridge published As a stealthy liver disease becomes more common, the search for treatments accelerates in Voices - our blog 2017-01-01 16:07:37 -0700
people with NASH usually have no symptoms. It’s estimated that roughly 2 percent to 5 percent of adults in the United States have the disease, and that another 10 percent to 20 percent may have its milder cousin, non-alcoholic fatty liver disease, or NAFLD, according to the National Institute for Diabetes and Digestive and Kidney Diseases. NASH is expected to become the most frequent reason for liver transplants by 2020.
Wayne Eskridge published Cirrhosis, a silent killer that threatens one fifth of adults in Voices - our blog 2017-01-01 15:57:26 -0700
The local newspaper wanted to do a story about liver disease and came along on a visit with my hepatologist. This is a link to their article.
Wayne Eskridge published My experience with MRI elastography in Voices - our blog 2017-01-01 15:42:16 -0700
As an analytical tool the GE MRI elastography was a vital tool in understanding my particular liver disease. GE wrote a story about it and published it in their magazine GE Reports
Fatty Liver Foundation organizer
As a liver disease patient my goal is to help others understand, manage, or prevent the disease