Wayne Eskridge published RESEARCH – How Do I Love Thee? Let Me Count The Ways in Voices - our blog 2019-04-27 08:11:23 -0600
with all due apologies to Elizabeth Barrett Browning.
I love thee to the depth and breadth and height my soul can reach.
As a patient, the scale of the effort directed at liver disease that has been put on display at AASLD, EASL and the NASH Summit recently was striking. Not being a veteran goer to this kind of event it was all a bit overwhelming. As an individual the scope of the activity is very difficult to wrap ones arms around. Interestingly, there is a great sense of gratitude attached to the experience of observing all of the effort that is being directed toward solutions that might one day mean life or death for me as an individual. The scale of the events is too big for me to digest in a meaningful way but are a powerful testament to the contributions of the health community to the best of us as a society.
I love thee to the level of every day’s most quiet need.
The day to day burden of living with chronic disease, of which cirrhosis is but one, cannot be appreciated by those who are not unwell. Even those in the profession see mostly the surface and would go quickly mad if they were to allow themselves to be sucked into the suffering of those they care for in any deeply personal way.Read more
Wayne Eskridge published Good news from the Primary care docs treating fatty liver in Voices - our blog 2019-03-06 11:29:46 -0700
I have been helping several groups doing research on what is happening with liver disease patients and I have been surprised by a trend that I have noticed. When a person first learns that they have a serious liver disease they reach out to Dr Google, our forum, and significantly to FaceBook support groups. I don't have numerical data, but I interact with multiple forums that reach thousands of patients so I have a window into what the day to day is like.
A problem we have focused on is that it has been the standard of care not to screen for liver disease at the primary care level, in the absence of symptoms. That means that the first time many people learn of their risk is being told that they have cirrhosis. Much of our effort has been spent trying to illuminate this as an issue. We are particularly concerned as the disease is showing up in younger people in the death rate statistics but we hadn't really seen movement in when people learn about the disease.Read more
Wayne Eskridge published Dying in your 40's, why are Americans choosing to do that? in Voices - our blog 2019-02-16 17:54:19 -0700
You may think dying of liver disease is for old people. According to the CDC it is the 4th leading cause of death for the 45-54 year olds. In this analysis a low number is very bad. If you ignore poisoning (drug overdose), and suicide, it is the second leading cause exceeded only by its common partner heart disease.
We provide quite a bit of information about the silent killer that is liver disease but since the organ has few symptoms before it starts to die most people don't see themselves as being at risk. Since you are on my newsletter list you probably know the disease for what it is. I am writing this one in hopes that you might forward it to someone you care about that may not be aware of the risk that they face. We frequently hear from young people with families who are suddenly diagnosed with cirrhosis. That is a mostly preventable tragedy but understanding the risk is the first step.
I encourage you to share this with someone you know who might benefit from the information.Read more
Hi my name is Brian I'm 42 right now . When I was 40 I was diagnosed with liver disease cirrhosis. I started drinking alcohol in highschool and in my 20s got a lot worse as time went on. The day after i got out of the hospital, which they took out 3 liters of fluid out of my stomach ,I stop drinking and smoking cigarettes . I started taking the water pills and low sodium diet and just Tee spoon of salt here and there . On my 6 month checkup , ultrasound came up cirrhosis, but blood results came out better then before and I was feeling better and no ascites and vein was ok . After about 8 months I started to get stronger and energy was getting better so I got a membership at the gym and started lifting weights and running and stair master . My second visit it's been 1 year and 2 months. All blood results came out normal and no cancer . Ultrasound showed evidence of fatty liver and not cirrhosis. And now I don't take water pills and feel great again and healthy. My advise to anyone is to stay positive, believe in yourself, stop drinking immediately , and all bad habits, and once you start feeling better , exercise, diet and is huge to become better . Anything is possible if you believe In yourself , please never give up . You can do it don't listen to all the negativity the Internet says . I hope I help someone out there .Soon I will be getting my personal trainer certificate, and professional nutrition certificate, and want to help people with liver disease..
Amsety and Fatty Liver Foundation Partner to Raise Funds for Liver Health Awareness Through the “Kiss and Click” Challenge
Now, for Millions of Americans, education on liver health is just a Kiss and Click away! Amsety - the first nutrition bar company dedicated to liver health, and the Fatty Liver Foundation - the first U.S. non-profit patient organization dedicated to the growing problem of fatty liver disease in America, are launching the “KISS AND CLICK FOR LIVER HEALTH” challenge.
Through this challenge, Amsety and the Fatty Liver Foundation are determined to promote awareness of the growing problem of liver disease in the US and to encourage donations to the Fatty Liver Foundation to support their liver health initiatives and fund fatty liver disease screenings for those at risk, but unable to afford the examination.Read more
Wayne Eskridge commented on WISH I HAD KNOWN 2019-02-11 16:05:56 -0700Green is usually used as the color for liver awareness, here is a link to a discussion at the ALF forum https://www.inspire.com/groups/american-liver-foundation/discussion/liver-disease-awareness-ribbon-color/
Wayne Eskridge published Can blood tests tell you anything about liver health? in Voices - our blog 2019-02-10 09:41:09 -0700
As an experiment, let's say that you are a person who cares about your health. Assume you know that liver disease is commonly asymptomatic or silent. It gives you no clue that it is dying until it is in bad shape. As an advocate for your own health, can you look at your own medical history and decide how likely it is that you need in depth diagnosis for the silent killer of cirrhosis?
There has been a lot of recent research on blood based screeners and the field is advancing rapidly. It is still early and the broad practice of primary care medicine has not yet started using the best information available routinely. However, we now know that we can look at something more than just whether AST and ALT are elevated as guides to advancing liver disease. It is important to understand that high levels of these tests indicate that a lot of liver damage is occurring. What you want to know is are you at risk of being in that situation even though you have no symptoms.Read more
The picture was taken June 2018. My hubby and I are about to be 55. It’s hard to believe that in the past 11 months I was diagnosed with cirrhosis, diagnosed with HCC, had 3 surgeries and about to have a 4th, been admitted 4 times to hospital for non surgical reasons and in the ER 17 times. I’ve lost count of the number of CT scans, MRIs, ultrasounds, and other diagnostic Radiology tools. I don’t remember all my doctors names or even what their specialty is. I’ve gone from not being able to walk to the toilet from my bed to hiking to see a waterfall. I’m alive.
When I was first diagnosed, my doctor told me his goal was to get me to die of an old age other than Cirrhosis complications. I was severely decompensated, leaking 2-3 liters a day of ascites from a surgical incision, and didn’t have a clue. I was scared to death because of all the things I had found on Dr Google. I was ready to give up.
One of the things he really emphasized was to not pay attention to any statistics. There were things I needed to do to help my body heal...but he couldn’t do it without me really jumping in and owning what needed to happen. I had to cut my sodium intake to less than 2000mgs per day. I needed to cut out processed foods, focus on lean protein and plant based protein. Even though I don’t drink, no celebration drinks for anything. I needed to increase my activity in whatever way I could...even if it was lifting a soup can 10 times with each hand. He also asked me to listen to what he said and not be afraid to ask questions.
It’s been a year since diagnosis. Yes, there are still things I have to deal with every day...some days more than others. And this disease is never far from my mind. Every thing I do or don’t do impacts it. I do constantly have a running calendar in my head of my doctors appointments and test dates. Due to being diagnosed with HCC in May and had an Ablation last week, everything is slightly increased in speed. I see my Hepatologist every three months and have blood work and CT scans every three months. Every day my breakfast appetizer is a handful of pills that keep the symptoms at bay.
It doesn’t matter what the cause of your Cirrhosis is. Mine is from NASH...but it could also be left over damage from being a hardheaded college kid who liked to party too much 35 years ago...or from being a teenager who liked “speed” a bit too much to get through what life had dealt me. We all have a past. Sometimes it’s yesterday. Sometimes it’s 50 years ago. Our past doesn’t define us.
You matter. Your story matters...even if you’re not ready to share it...it’s still important.
My story isn’t done yet. It’s being written everyday. Someday, not soon, there will be a finishing period to my story. But not yet. I’m going to live! How about you?
Wayne Eskridge published Have you been diagnosed with NASH? in Voices - our blog 2018-07-30 16:16:17 -0600
If so, you are not alone. This is a link to some patient education materials we are working on as part of our mission to bring the problem of liver disease into the public discussion.
Wayne Eskridge published MIcki wasn't told of liver disease, why? Doc said no need in Patient Stories 2018-07-28 13:09:14 -0600
Posted with Micki's permission:
I think the doctors are just really learning about this beast!! I had a procedure and my liver was biopsied (unbeknownst to me- but luckily records included info) and when I started getting sick- my docs were able to investigate my history and access my records and saw what the problem was.... I was not once notified of the biopsy or results. I went back to the dr that performed it to ask why he failed to notify me- he said there was no reason to bc there is no cure!! I could’ve turned things around- this is going to be one of the fastest growing medical issues over the next 10 years!! These docs better get in the know!!!
Wayne Eskridge published Health in the land of unintended consequences in Voices - our blog 2018-07-25 15:27:09 -0600
It is said that death and taxes are the only constants but we should include the Law Of Unintended Consequences as a universal truth. For patients this is particularly true. We want to be well but every decision carries the potential for things we didn't expect.
How bad is it? It has been projected that today's children will be the first generation in history to have a shorter life span than their parents. Even with the rapid advancement of medicine the society is becoming less well and chronic disease in many forms is epidemic. Even if we live longer, the end of life when we suffer and die slowly and painfully is getting longer for many. Not the ideal trade off perhaps.
Wayne Eskridge published Your BLISS POINT is being massaged. Do you know who is doing it? in Voices - our blog 2018-07-22 15:44:10 -0600
I bet you didn't know you had a Bliss Point, but you do, and it is being manipulated every day by strangers in white coats.
Not to be confused with the G spot, the Bliss Point, is also a source of pleasure but it can become a pathway to disease and death.
The Bliss Point is a concept developed by food researchers. This is the industrial food industry at work. The way we perceive most foods is by the combination of salt, sugar, and fat which we interpret as "tastiness". That perfect combination satisfies our brain and makes us feel good and we "like" that particular food. Well whoop di do, that seems like a good idea, who could object to good tasting food? Well, none of us really, but how might our response to food be used against us?
Wayne Eskridge commented on My Story 2018-07-17 12:14:17 -0600It is such a blow to learn that information like that isn’t given to the patient. I don’t understand how that ever could happen but it comes up in patient stories far too often. Just another reason for why you have to be your own patient advocate. A lesson here, you own your medical information. Always ask for copies of everything and keep your own files then ask questions.
Wayne Eskridge commented on Study confirms the value of olive oil for health 2018-06-23 19:36:08 -0600Hi Again Debra
most people don’t really know how fats work in the body. Since you are asking about an oil you might find this of value to understand how the different fats and oils work
Fatty Liver Foundation organizer
As a liver disease patient my goal is to help others understand, manage, or prevent the disease