Fatty Liver Foundation organizer

As a liver disease patient my goal is to help others understand, manage, or prevent the disease


  • published why11 2017-06-07 19:43:56 -0600

  • Terminal illness from a doctor's perspective

    The caregiver journey often ends attending a loved one through the death vigil.  It isn't something that we do everyday and for most it is a life affirming or life altering experience.  Rarely do we wonder how the professionals that attend to deaths everyday think about the process.

    I happened to read a very perceptive piece by Dr Jeremy Topin who wrote in his personal blog, www.jtopin.wordpress.com, about a particular patient.  I'll include an excerpt here but recommend reading his entire article.

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    Mrs. Valentine’s family waits for me in the ICU. The overnight nurse has already filled me in on the evening’s events. The family has come to a unified decision and they have called friends and loved ones from near and far. Their mom has been on the ventilator for six days and continues to get worse. Her pneumonia and kidneys are the most urgent problems, leaving her dependent on a ventilator and dialysis. But underneath the surface, her lung cancer is the real culprit. What started as a time-limited trial to see if her lung infection could get better, had now run its course. The family knows we are no longer helping her to live; we are prolonging her death. This is not what she wanted.

     

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  • commented on Fatigue, the lifesucker that will stalk you if you become ill 2017-05-10 09:19:21 -0600
    This discussion deals with how fatty liver patients might deal with fatigue. It would not do to imply that this is the only source of fatigue. For example, with a badly inflamed liver it will increase tumor necrosis factor and interleukin 2. Both of those will make you feel tired and lousy. All medical issues are multifaceted, but the advice in the blog post does apply to life and overlays any other medical issues.
  • commented on Albumin treatment improves overall survival for decompensated cirrhosis patients 2017-04-23 09:21:53 -0600
    Given that production of albumin is one of the most important functions of the liver. You would think this would be standard therapy already. Puzzling.

    Serum albumin is the main protein of human blood plasma.7 It binds water, cations (such as Ca2+, Na+ and K+), fatty acids, hormones, bilirubin, thyroxine (T4) and pharmaceuticals (including barbiturates): its main function is to regulate the Oncotic pressure of blood. Alpha-fetoprotein (alpha-fetoglobulin) is a fetal plasma protein that binds various cations, fatty acids and bilirubin. Vitamin D-binding protein binds to vitamin D and its metabolites, as well as to fatty acids. The isoelectric point of albumin is 4.9.
  • commented on SCREENING PROJECT 2017-04-22 09:53:14 -0600
    100 million people have fatty liver disease our plan for a mobile service will help support #idahogives
  • commented on Supplements 2017-04-19 21:17:35 -0600
    Hi Dawn
    Beyond the quality control issues of the supplement industry, liver patients need to remember that everything that goes into their body must go to the liver. There are so many chemicals in herbals that we simply don’t know much about that if your liver is sick supplementation is an expensive game of Russian Roulette.
    Wayne
  • posted about Experts by Experience from Inspire.com - patient stories that inspire on Facebook 2017-04-19 17:36:51 -0600
    Experts by Experience from Inspire.com - patient stories that inspire

  • published fatty liver overview 2017-04-14 15:49:54 -0600

    This is what you will find here:

    • Non-technical explanation of how your body actually works
    • How the liver develops disease over time
    • Why fats are a critical source of fuel for your cells
    • How the liver manages triglycerides
    • How the course of fatty liver disease depends on triglycerides and carbohydrates
    • How the kind of dietary fat you use matters
    • Information by a liver patient for liver patients
    • Information about diet based upon bio-chemistry not fads

    We are a nonprofit foundation and we do not represent anyone but the patient. If you are looking for advice on supplements or quick fixes this is not the place for you. We offer extensive information about the body in general, the liver specifically, and we recommend lifestyle strategies that have worked for me specifically and which I believe are valuable for anyone concerned about liver health to be familiar with.


  • published Sponsors in ABOUT 2017-04-09 12:08:13 -0600

    Fatty Liver Foundation Sponsors - A Special Group

    Click here for information about our sponsorship programs.

    For any non-profit foundation the support of the community is really life and death.  We depend upon people who believe that our efforts are of value.  We greatly appreciate the support of everyone who helps us.  Sponsors are those people and groups who provide help above and beyond just believing in our cause.  If you would like to be a sponsor please contact us.

    Donations can be made as money or "in kind" and both are very valuable to us.  In Kind is any good or service which furthers out goals and serve our community and everything helps.

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  • published NEWS 2017-03-15 19:16:02 -0600

  • published Disclaimer in About FLF 2017-03-12 10:08:11 -0600

    Legal Disclaimer - This Information Is Not FDA Approved

    Legal notice: This site does not provide medical advice

    The goal of this website is to share my experiences and information as I seek to use nutrition and a health supportive lifestyle to manage my liver disease.  I have to tell you the legal things below because our society is riddled with lawyers.

    By using this site, you signify your assent to these Terms and Conditions. If you do not agree to all of these Terms and Conditions of use, do not use this site.

    All post and information provided within this site is for informational and educational purposes only, and is not to be construed as medical advice or instruction. No action should be taken solely on the contents of this website. Please consult your physician or a qualified health professional on any matters regarding your health and well being or on any opinions expressed within this website. The information provided in the site is believed to be accurate based on the best judgment of the author. The words and other content pro­vided in this site, and in any linked mate­rials, are not intended and should not be con­strued as medical advice. If the reader or any other person has a medical concern, he or she should consult with an appropriately-licensed physician or other health care worker. Never dis­regard pro­fes­sional medical advice or delay in seeking it because of some­thing you have read on this site or in any linked materials. However, you as the reader must be responsible for consulting with your own health professional on  matters raised within. I, the founder of the Fatty Liver Foundation, will not accept any responsibility for the actions or consequential results of any action taken by any reader.

    Reliance on any information provided by the Fatty Liver Foundation, others appearing on the Site at the invitation of the Fatty Liver Foundation, or other visitors to the site is solely at your own risk.

    Any statements or claims about the possible health benefits have not been evaluated by the Food & Drug Administration and are not intended to diagnose, treat, cure or prevent any disease.

    The Fatty Liver Foundation is not responsible for the content of linked third-party sites, sites framed within the Fatty Liver Foundation Site, third-party sites provided as search results, or third-party advertisements, and does not make any representations regarding their content or accuracy. Your use of third-party websites is at your own risk and subject to the terms and conditions of use for such sites.

     If Fatty Liver disease or its cousins concern you, join the Foundation, its free


  • commented on COMPARE Diets 2017-03-07 17:07:41 -0700
    As a liver patient the thing that surprised me most was that virtually all diet gurus ignore the potential impact their advice has on liver health.
  • End of life care - Do you care what it is like

    All of us face the difficult prospect of a parent or loved one suffering from an illness that ultimately leads to death. When that time comes, we will want to ease their physical and emotional pain, respect their wishes, and allow them to die with dignity — the same things we will want for ourselves.

    https://www.statnews.com/2017/02/24/end-of-life-care-improvements/

    The way that Americans die has changed but, unfortunately, our medical system hasn’t kept up. It was designed at a time when death was often sudden or declines in health were relatively rapid. These days it is often a long and very difficult journey to death. When that time comes, we will want to ease their physical and emotional pain, respect their wishes, and allow them to die with dignity — the same things we will want for ourselves. much more common for people to live longer with multiple chronic conditions, and we have the technology to prolong life as death approaches. End-of-life care is fragmented, intensive, and costly — and patients’ wishes are often lost due to poor communication.

    Two serious gaps in health insurance coverage threaten many people facing the end of life. Medicare does not provide coverage for social supports, like breaks for family caregivers, or for the coordination of care. Medicare policy should be changed to include benefits for those diagnosed with advanced illness that provide social supports and care coordination through a defined care team. This kind of coverage would encourage team-based organizations to meet the needs of patients. Medicare should test the integration of its hospice benefit into Medicare Advantage and other demonstrations. Improving efficiency and delivery will help those who are seriously ill get the care they need — and help their caregivers deliver it — without jumping through hurdles and battling a bureaucracy not designed with their circumstances in mind.


  • posted about A great explanation of fructose, a quiet killer on Facebook 2017-02-22 20:15:48 -0700
    Great explanation about fructose, a quiet killer you should understand

    Great explanation about fructose, a quiet killer you should understand

    Fructose’s propensity to cause fatty liver is unique among carbohydrates. The fatty liver directly causes insulin resistance setting in motion the vicious cycle of hyperinsulinemia – insulin resistance. Furthermore, this harmful effect of fructose does not require high blood glucose or blood insulin levels to wreak havoc. Further, this fattening effect, because it acts through fatty liver and insulin resistance, cannot be seen in the short term – only in the long term.

    Fructose, Fatty Liver, and insulin resistance

    Fructose overconsumption directly produces fatty liver, which in turn directly creates insulin resistance. Fructose is five to ten times more likely than glucose to cause fatty liver. This sets off a vicious cycle. Insulin resistance leads to hyperinsulinemia, to ‘overcome’ this resistance. However, this backfires, as the hyperinsulinemia, made worse by the attendant glucose load, leads to further insulin resistance.

    If fatty liver disease or its cousins concern you, join the Foundation, its free click here


  • posted about ever_wonder_how_to_kill_a_rat_with_food on Facebook 2017-02-21 08:15:37 -0700
    Ever wonder how to kill a rat with food

    Ever wonder how to kill a rat with food

     There is a concept of "healthy" saturated fat.  Since being saturated refers to a bio-chemistry definition in which all available  carbon bonds are used by a hydrogen atom I've wondered what that meant.  I had never considered how the research on fibrosis is actually done with animal trials but I was fortunate to be able to recently attend a conference of about 200 of the top liver researchers in the world. The official focus was to update everyone on the progress on the most interesting 20+ drugs inching closer to human trials and possibly a treatment for fibrosis but I was struck by the specifics of how the research is done.

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    When you want to study how a drug might work against liver disease in a mouse or rat you first have to give it liver disease. How might that be done quickly and cheaply and mimic human disease you might be moved to ask. Well, suppose there are two really good diets you can feed them. It is that simple. There are two main ones that are named the "Western Diet" and the "Fast Food Diet".

    I wonder what might be in that food. Would it surprise you to learn they have two main components? Would you bet on lots of saturated fat and sugar? It is that simple. You can give a mouse cirrhosis in weeks by just feeding them what you eat and feed your kids every day.

    The information on the bio-chemistry was absolutely fascinating but I was dumbfounded by the little detail of how to create illness that ran through the conference. I'm pondering how to make that more clear to people in general but I offer it here for whatever it may be worth.  

    If fatty liver disease or its cousins concern you, join the Foundation, its free click here


  • posted about The WHO chief cardiologist discussing food and the heart but it applies to your liver as well on Facebook 2017-02-20 12:52:48 -0700
    WHO chief cardiologist discussing food it applies to your liver as well if health matters join us

    The WHO chief cardiologist discussing food and the heart but it applies to your liver as well

    For liver patients the discussion about salt in this video is not correct, but the discussions about fats and their effect on health is spot on and backed up by lots of research.

    If fatty liver disease or its cousins concern you, join the Foundation, its free click here


  • posted about Fructose is a terrible thing to eat but it is everywhere. on Facebook 2017-02-18 14:12:37 -0700
    Fructose is a terrible thing to eat but it is everywhere.

  • posted about Parenting Tip 37 - how to kill your kids on Facebook 2017-02-18 13:08:50 -0700
    Parenting Tip 37 - how to kill your kids

    Parenting Tip 37 - how to kill your kids

    Recent study showed that a high intake of sugar sweetened beverages was associated with high metabolic risk cluster among both sexes; with boys tending to consume more sweet drinks than girls. Adolescents who drank more than 500 mL daily showed an increased risk for high overall metabolic risk; boys had a 10.3-fold risk for contracting metabolic syndrome by International Diabetes Federation (IDF) criteria and girls a 5.1-fold risk  by Cook criteria.  Moderate and high-consuming male SSB drinkers had greater triglyceride levels compared with nondrinkers.

    “The present results indicated that boys who consumed a high amount of sugar sweetened beverages exhibited a 5.1- to 10.3-fold risk of developing metabolic syndrome, even if the prevalence of this metabolic disorder is low,” the researchers wrote.

    http://www.healio.com/hepatology/steatohepatitis-metabolic-liver-disease/news/online/

    Drinks sweetened with fructose are setting our kids up for serious health problems as they get older by increasing the likelihood that they will suffer from liver disease and diabetes.  A factoid parents might like to keep in mind.

    If fatty liver disease or its cousins concern you, join the Foundation, its free click here


Engineer and cirrhosis patient, founder of the Fatty Liver Foundation

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