Wayne Eskridge posted about Experts by Experience from Inspire.com - patient stories that inspire on Facebook 2017-04-19 17:36:51 -0600Experts by Experience from Inspire.com - patient stories that inspire
The “Experts by Experience” series are special reports by Inspire developed in cooperation with Stanford University Medical School. Each compilation is comprised of a year’s worth of monthly columns written for Stanford Medicine’s “Scope” medical blog.
In “Experts by Experience 2017,” patients and caregivers affected by such diseases as stomach cancer, bladder cancer, scleroderma, Ehlers-Danlos Syndrome, lipedema, sarcoidosis, share their experiences and insights.
This is what you will find here:
- Non-technical explanation of how your body actually works
- How the liver develops disease over time
- Why fats are a critical source of fuel for your cells
- How the liver manages triglycerides
- How the course of fatty liver disease depends on triglycerides and carbohydrates
- How the kind of dietary fat you use matters
- Information by a liver patient for liver patients
- Information about diet based upon bio-chemistry not fads
We are a nonprofit foundation and we do not represent anyone but the patient. If you are looking for advice on supplements or quick fixes this is not the place for you. We offer extensive information about the body in general, the liver specifically, and we recommend lifestyle strategies that have worked for me specifically and which I believe are valuable for anyone concerned about liver health to be familiar with.
For any non-profit foundation the support of the community is really life and death. We depend upon people who believe that our efforts are of value. We greatly appreciate the support of everyone who helps us. Sponsors are those people and groups who provide help above and beyond just believing in our cause. If you would like to be a sponsor please contact us.
Donations can be made as money or "in kind" and both are very valuable to us. In Kind is any good or service which furthers out goals and serve our community and everything helps.
Legal notice: This site does not provide medical advice
The goal of this website is to share my experiences and information as I seek to use nutrition and a health supportive lifestyle to manage my liver disease. I have to tell you the legal things below because our society is riddled with lawyers.
By using this site, you signify your assent to these Terms and Conditions. If you do not agree to all of these Terms and Conditions of use, do not use this site.
All post and information provided within this site is for informational and educational purposes only, and is not to be construed as medical advice or instruction. No action should be taken solely on the contents of this website. Please consult your physician or a qualified health professional on any matters regarding your health and well being or on any opinions expressed within this website. The information provided in the site is believed to be accurate based on the best judgment of the author. The words and other content provided in this site, and in any linked materials, are not intended and should not be construed as medical advice. If the reader or any other person has a medical concern, he or she should consult with an appropriately-licensed physician or other health care worker. Never disregard professional medical advice or delay in seeking it because of something you have read on this site or in any linked materials. However, you as the reader must be responsible for consulting with your own health professional on matters raised within. I, the founder of the Fatty Liver Foundation, will not accept any responsibility for the actions or consequential results of any action taken by any reader.
Reliance on any information provided by the Fatty Liver Foundation, others appearing on the Site at the invitation of the Fatty Liver Foundation, or other visitors to the site is solely at your own risk.
Any statements or claims about the possible health benefits have not been evaluated by the Food & Drug Administration and are not intended to diagnose, treat, cure or prevent any disease.
The Fatty Liver Foundation is not responsible for the content of linked third-party sites, sites framed within the Fatty Liver Foundation Site, third-party sites provided as search results, or third-party advertisements, and does not make any representations regarding their content or accuracy. Your use of third-party websites is at your own risk and subject to the terms and conditions of use for such sites.
Wayne Eskridge published End of life care - Do you care what it is like in Caregiver Stories 2017-02-26 08:56:29 -0700
All of us face the difficult prospect of a parent or loved one suffering from an illness that ultimately leads to death. When that time comes, we will want to ease their physical and emotional pain, respect their wishes, and allow them to die with dignity — the same things we will want for ourselves.
The way that Americans die has changed but, unfortunately, our medical system hasn’t kept up. It was designed at a time when death was often sudden or declines in health were relatively rapid. These days it is often a long and very difficult journey to death. When that time comes, we will want to ease their physical and emotional pain, respect their wishes, and allow them to die with dignity — the same things we will want for ourselves. much more common for people to live longer with multiple chronic conditions, and we have the technology to prolong life as death approaches. End-of-life care is fragmented, intensive, and costly — and patients’ wishes are often lost due to poor communication.
Two serious gaps in health insurance coverage threaten many people facing the end of life. Medicare does not provide coverage for social supports, like breaks for family caregivers, or for the coordination of care. Medicare policy should be changed to include benefits for those diagnosed with advanced illness that provide social supports and care coordination through a defined care team. This kind of coverage would encourage team-based organizations to meet the needs of patients. Medicare should test the integration of its hospice benefit into Medicare Advantage and other demonstrations. Improving efficiency and delivery will help those who are seriously ill get the care they need — and help their caregivers deliver it — without jumping through hurdles and battling a bureaucracy not designed with their circumstances in mind.
Wayne Eskridge posted about A great explanation of fructose, a quiet killer on Facebook 2017-02-22 20:15:48 -0700Great explanation about fructose, a quiet killer you should understand
Fructose’s propensity to cause fatty liver is unique among carbohydrates. The fatty liver directly causes insulin resistance setting in motion the vicious cycle of hyperinsulinemia – insulin resistance. Furthermore, this harmful effect of fructose does not require high blood glucose or blood insulin levels to wreak havoc. Further, this fattening effect, because it acts through fatty liver and insulin resistance, cannot be seen in the short term – only in the long term.
Fructose overconsumption directly produces fatty liver, which in turn directly creates insulin resistance. Fructose is five to ten times more likely than glucose to cause fatty liver. This sets off a vicious cycle. Insulin resistance leads to hyperinsulinemia, to ‘overcome’ this resistance. However, this backfires, as the hyperinsulinemia, made worse by the attendant glucose load, leads to further insulin resistance.
Wayne Eskridge posted about ever_wonder_how_to_kill_a_rat_with_food on Facebook 2017-02-21 08:15:37 -0700Ever wonder how to kill a rat with food
There is a concept of "healthy" saturated fat. Since being saturated refers to a bio-chemistry definition in which all available carbon bonds are used by a hydrogen atom I've wondered what that meant. I had never considered how the research on fibrosis is actually done with animal trials but I was fortunate to be able to recently attend a conference of about 200 of the top liver researchers in the world. The official focus was to update everyone on the progress on the most interesting 20+ drugs inching closer to human trials and possibly a treatment for fibrosis but I was struck by the specifics of how the research is done.
When you want to study how a drug might work against liver disease in a mouse or rat you first have to give it liver disease. How might that be done quickly and cheaply and mimic human disease you might be moved to ask. Well, suppose there are two really good diets you can feed them. It is that simple. There are two main ones that are named the "Western Diet" and the "Fast Food Diet".
I wonder what might be in that food. Would it surprise you to learn they have two main components? Would you bet on lots of saturated fat and sugar? It is that simple. You can give a mouse cirrhosis in weeks by just feeding them what you eat and feed your kids every day.
The information on the bio-chemistry was absolutely fascinating but I was dumbfounded by the little detail of how to create illness that ran through the conference. I'm pondering how to make that more clear to people in general but I offer it here for whatever it may be worth.
Wayne Eskridge posted about The WHO chief cardiologist discussing food and the heart but it applies to your liver as well on Facebook 2017-02-20 12:52:48 -0700WHO chief cardiologist discussing food it applies to your liver as well if health matters join us
For liver patients the discussion about salt in this video is not correct, but the discussions about fats and their effect on health is spot on and backed up by lots of research.
Wayne Eskridge posted about Fructose is a terrible thing to eat but it is everywhere. on Facebook 2017-02-18 14:12:37 -0700Fructose is a terrible thing to eat but it is everywhere.
Watch this short video to learn about why fructose is bad for you to consume
Wayne Eskridge posted about Parenting Tip 37 - how to kill your kids on Facebook 2017-02-18 13:08:50 -0700Parenting Tip 37 - how to kill your kids
Recent study showed that a high intake of sugar sweetened beverages was associated with high metabolic risk cluster among both sexes; with boys tending to consume more sweet drinks than girls. Adolescents who drank more than 500 mL daily showed an increased risk for high overall metabolic risk; boys had a 10.3-fold risk for contracting metabolic syndrome by International Diabetes Federation (IDF) criteria and girls a 5.1-fold risk by Cook criteria. Moderate and high-consuming male SSB drinkers had greater triglyceride levels compared with nondrinkers.
“The present results indicated that boys who consumed a high amount of sugar sweetened beverages exhibited a 5.1- to 10.3-fold risk of developing metabolic syndrome, even if the prevalence of this metabolic disorder is low,” the researchers wrote.
Drinks sweetened with fructose are setting our kids up for serious health problems as they get older by increasing the likelihood that they will suffer from liver disease and diabetes. A factoid parents might like to keep in mind.
Wayne Eskridge posted about Fat men die young, ever wonder why? on Facebook 2017-02-18 12:43:41 -0700Fat men die young, ever wonder why?
One more reason why women live longer than men. Eating too much fat can make you put on weight and lead to heart disease - especially if you eat too much of the wrong kind of fat, such as the omega-6 fats found in many processed foods. But now it seems sausages, pastries and cakes are even worse for men than they are for women. @zoeharcombe #fattyliver
My mother, Geneva Eskridge, was one of the inspirations for this foundation. She passed away, a few days short of her 94th birthday of complications arising from her lung cancer. Her family was there and had been with her during her final days. She was well and truly loved by those who knew her and she rarely met anyone whom she did not befriend. She will be sorely missed by many.
For anyone not familiar with her and for those who knew her well I’d like to offer a brief visit with her indomitable spirit. Geneva exemplified the best of us and we can but hope to approach our lives in the same spirit. When diagnosed with lung cancer at the age of 91 she decided to go skydiving rather than retreat from life. The link below is to her first jump and the second is when she jumped again at 92
I only hope that I can live up to her example with my life and our family offers her memory to you as an example of a life well led. I regret that the role of caregiver, which I worried that I might be unable to perform adequately, was cut tragically short by unforeseen events.
Wayne Eskridge posted about The caregiver's vigil, thoughts at the end on Facebook 2017-02-13 20:02:03 -0700The caregiver's vigil, thoughts at the end of life
The caregiver's role for most is a date with the inevitable. This is a special burden that anyone who has not done it cannot really wrap their minds around. There is an odd relationship that develops between a person who knows that death is nearby and a loved one who accepts the role of helper in the vigil. Even if unspoken or acknowledged there is a link quite unlike any that one has in everyday life. Regardless of the circumstances there is a unique relationship between the main character and the watcher in this very human drama.
Most of the time we think little about our own death. For most of our lives we see it as being some far future which we don't dwell upon. Being a player in the drama forces an awareness of our own mortality upon us which I suspect never really goes away.
My mother passed away a few days ago and I find that my mind seems to have a mind of its own as memories of happier times rise unbidden and somehow get stuck in my eyes making them blurry.
We live with change every day and we hear of the death of people we know and love throughout our lives but the act of participating changes you. For the better I am hoping as I don't wish to go through the rest of my life with a rogue mind but if you ever are faced with the decision of whether to be a caregiver or not, do it if you can. As hard as it is you will be better for it.
- Did you know that liver disease is often without symptoms?
- Did you know that it is very common to learn you have stage 4 fibrosis or cirrhosis as your first warning?
- Did you know that cirrhosis is not curable?
- Did you know that doctors will tell you not to worry about fatty liver even though it can lead to cirrhosis?
OK can you tell me what really happens?
The key is to understand what you do to yourself. Here are a few videos that will help you understand the problem.
This first video is generally good but simplifies the explanation of a complex problem in order to make it short. However, the general overview is instructive but makes it sound too simple. Dr Reddy markets his services through videos. We are not involved with his clinic but his video is helpful. More specific details of liver disease are included in following videos for those who want to understand specifics.
In the liver the danger of the fatty liver disease process is basically the fat accumulating in your liver when it shouldn't, mostly because of your bad diet. That sets you up for liver damage which harms almost every organ in your body. These videos explain what happens in the liver when you eat poorly and explains screening for disease.
These videos take you into the bio-chemistry. If you are going to manage your liver problems you have to believe the message that lifestyle and diet are fundamental. If you understand the fundamentals you are equipped to make wise choices about your day to day lifestyle.
Something to be aware of is that fatty liver disease, caused by a constant liver stress resulting from a bad diet, sets you up for a variety of diseases. To understand this it is important to realize that the liver is central to energy use and storage which are fundamental to you being alive. This energy process uses lipoproteins which are managed by the liver as you can learn in this brief video.
One of the first systems to begin to fail with liver damage is insulin management which leads to diabetes. You may find it interesting that medicine treats diabetes but treatments for the root cause, compromised liver function, are limited.
Boy that sucks. How can I get my liver tested?
Sadly liver fibrosis production is mostly silent and there is no warning before it becomes serious. Doctors watch for elevated liver enzymes in blood tests and may do an occasional ultrasound. The unfortunate truth is that enzymes aren't usually elevated until significant damage is done and an ultrasound doesn't give any warning until the liver is at least 30% fat. If you are overweight you can assume that you are accumulating fat in your liver but screening tests are limited. Once fibrosis begins to form a specialized ultrasound called Fibroscan can detect those changes in the liver. In these videos doctors discusses the liver and Fibroscan. The first is only 2:33 so a quick overview.
If all of that isn't enough, here is a clinical lecture which goes into detail on liver disease diagnosis and the use of Fibroscan. It is excellent but is an hour long.
Wayne Eskridge published Your doctor may give you diet advice that will kill you in Voices - our blog 2017-02-11 16:08:08 -0700
This is a very thoughtful article about the generally poor advice patients get from their doctors. Obesity is the stalking horse of death for many Americans and despite much marketing hype we are failing as a society. The next generation is likely to be the first whose life expectancy will be less than their parents. Liver disease and the co-morbidity it contributes to are multi-decade killers. This article is from StatNews by AGUSTINA SAENZ and is a good discussion of the problem.
Clinicians, often get nutrition information that’s influenced by industries selling American-style fare, like red meat, sugar, ice cream, and soda. The “moderation” clause soon creeps in. Easy-to-grab, fast food options are even sold in hospitals, the sacred places where the sickest people go for treatment and recovery.Read more
Wayne Eskridge posted End of life care - Do you care what it is like to Caregiver's Blog = what is it really like = this is a member blog join us and tell your story 2017-02-26 08:56:28 -0700
I thought hospice was supposed to make him comfortableSee all posts or If you are a caregiver tell us your story
Posted by · February 10, 2018 8:09 AM · 2 reactions
Fatty Liver Foundation organizer
As a liver disease patient my goal is to help others understand, manage, or prevent the disease