With a bit of time, even things like the COVID virus are accommodated by our fears and broader concerns bubble back up. One of the challenges faced by a lot of people with serious chronic illness is that they are alone physically or emotionally.
As I think about these past weeks and staying at home I realize that I am so very fortunate. My wife Rosemary makes my days in isolation a joy rather than a burden but I see messages in our patient forums that break my heart from people who are literally dying deaths of despair. If you are well enough, reach out to those you know who are lonely. Chronic illness is difficult enough without having to do it alone.
Click the picture below for a link to a bit of fun on the subject of introspection. Many of you are old enough to remember this but it may be meaningful to our younger folks as well. (The picture isn't related, I just like it)
This is what you will find here:
- Non-technical explanation of how your body actually works
- How the liver develops disease over time
- Why fats are a critical source of fuel for your cells
- How the liver manages triglycerides
- How the course of fatty liver disease depends on triglycerides and carbohydrates
- How the kind of dietary fat you use matters
- Information by a liver patient for liver patients
- Information about diet based upon bio-chemistry not fads
We are a nonprofit foundation and we do not represent anyone but the patient. If you are looking for advice on supplements or quick fixes this is not the place for you. We offer extensive information about the body in general, the liver specifically, and we recommend lifestyle strategies that have worked for me specifically and which I believe are valuable for anyone concerned about liver health to be familiar with.
Since you are on my mailing list you know about NASH, unlike most of the people. We had the 2019 version of NASHday on the 12th and as I think about how that event went I am struck by the fact that as a health outreach it was unusual.
I'll explain why but first, the punchline, NASHday was about people's lives and not about money.
We have every kind of "DAY" that you can think of. Every cause has a day or a month, some peg to hang the cause on and to focus attention. Just as an example, these are the top five unofficial holidays according to toptenz.net.
1. Black Day.
2. Autistic Pride Day.
3. International Free Hugs Day.
4. Monkey Day.
5. Record Store Day.
This is a major step for us as patients. We all know the story. The doc says sadly, "You have cirrhosis, I'm sorry we have no treatment". This is a refrain we see retold thousands of times here at the Foundation and it is the path I have personally traveled. I've written that we are on the brink of a new day when we will have options. This is the dawning of that day.Read more
Where is your liver
How does your liver affect digestion?
What are the liver's metabolic functions?
How does your liver affect blood clotting?
What other proteins does your liver make?
What are the hormonal functions of your liver?
What is your liver’s role in breaking down unwanted substances?
The liver, an amazing organ!
Some Liver Facts!
Hopefully you clicked on the picture to hear the very short quote from Shakespeare. Sometimes I can't resist a bit of drama.
Since you have an interest in liver disease, I wanted to let you know that we have reached a real milestone in the development of the foundation. We intend to help change the way liver disease, particularly NASH, is managed and to save the lives of millions who do not know today that they are at risk.Read more
In every battle there are moments which mark the end of an era. They portend the beginning of something new and a time when tiny things can sprout and grow to a vast scale. We have just completed our installation and certification of our first FibroScan system for our liver screening project. We are alive and well in Texas City and a new day is dawning.
I recently wrote about my view that for the first time a cirrhosis patient could look forward to real medical therapies. A few folks felt that I was planting false hopes and that such miracles weren't going to happen. In light of that, I thought I might provide a broader view of the situation today.
Some of you are old enough to remember that not so long ago Hep C was unknown. We called the illness non A non B hepatitis. Today we have a cure. A miracle perhaps but also a lesson.Read more
This information is primarily for physicians but may be of value to some of our patients. As a patient, it is important to know that the interpretation of a Fibroscan score is not simple. The meaning of a test depends upon what caused the liver damage as we can see in this scoring guide.
In light of this, it is important that a qualified physician makes the interpretation of your test results. Some of the guidance available for physicians is found in these documents.
The National Fatty Liver Registry (NFLR) is in its design stage. As outlined in our Screening Project introduction, there is a great need for identifying patients at risk and with liver disease. Our goal is to build the largest database of tests for liver disease in the world. At scale and full deployment, our target is one million tests per year, capturing valuable data for epidemiological and interventional research.
The fundamental goal of the Foundation is to alert the individual patient to the risks they may have of developing liver disease as a result of lifestyle issues. The Foundation is also commited to building a research resource which will deliver lasting benefit to society at large and to the research community.
The Foundation is taking a proactive, leading sponsorship role in the development of the NFLR. We are working with leading organizations and partners to design and implement this strategic project. If you have interest in being part of the effort, contact us for more information and how you can help.