As I write this I see the covid numbers are rising again. I hear people in denial, it could never happen to them. Today I have something equally life threatening to write about. It is not about Covid. It’s about ANOTHER little recognized epidemic. I lived it. I will be very happy if this resonates with just one person.
Here’s my story.
Christmas Eve 2013, I was feeling pretty proud of myself. I was on my way to a healthier life. Earlier in the year I joined my local YMCA. I exercised 6 days a week. I was eating healthy and watching calories. All in an effort to lose weight. I had been overweight since I was a child. Smaller clothes was just a small part of why after 30 years I was losing weight. Feeling good was a great reason but what gave me real motivation was the fact I wanted to be a living kidney donor for a family member. I had lost 96 pounds in 7 months. Then I woke up with what I thought was the flu. By evening I thought I was doing better. When I got sick and vomited up a huge amount of red blood. I found myself in my local ER where I was literally bleeding to death with no clue why. I was taken to the back where I was still very much awake and scared to death.Read more
Welcome to the Fatty Liver Foundation's Webinar Hub!
Here you can find all of the info about our upcoming webinars, as well as the details and links to recordings of previous webinars.
NEXT WEBINAR: Wednesday February 3, 2021
Wellness Webinar Part 1 (COVID-19 and Liver Disease) click here to register!
In 2020 we produced the LIVER (Live Interactive Virtual Education and Review) Webinar Series, consisting of four parts.
In 2021 we are producing the Wellness Webinar Series, consisting of six parts.
This is what you will find here:
- Non-technical explanation of how your body actually works
- How the liver develops disease over time
- Why fats are a critical source of fuel for your cells
- How the liver manages triglycerides
- How the course of fatty liver disease depends on triglycerides and carbohydrates
- How the kind of dietary fat you use matters
- Information by a liver patient for liver patients
- Information about diet based upon bio-chemistry not fads
We are a nonprofit foundation and we do not represent anyone but the patient. If you are looking for advice on supplements or quick fixes this is not the place for you. We offer extensive information about the body in general, the liver specifically, and we recommend lifestyle strategies that have worked for me specifically and which I believe are valuable for anyone concerned about liver health to be familiar with.
Why outbreaks like coronavirus spread exponentially, and how to “flatten the curve” (Washington Post)
Coronavirus Live Updates (NYTimes)
Coronavirus: Why You Must Act Now (Medium)
COVID Tech Handbook: Resources for Doctors (Crowdsourced)
COVID-19 Maps & visuals (CIDRAP)
COVID-19 Disease Resources (WHO)
COVID-19 diagnosis and treatment (JAMA)
Helping with Seniors' mental health
Tracking Every Coronavirus Case in the U.S.: Full Map (NYTimes)
A detailed guide to the coronavirus drugs and vaccines in development (STAT)
Identifying Communities at Risk of COVID-19 (XY.AI)
-Coronavirus: Why You Must Act Now (Politicians, Community Leaders and Business Leaders: What Should You Do and When?)
-More COVID-19 Resources here (including patient facing ChatBots and more).
My poor inbox groans under the weight of CBD articles and pitches. I've hesitated to jump into this pit again but I get a steady stream of questions from patients about using it.
We need to be clear about this issue. CBD oil is biologically active. However, that doesn't mean it is good or bad for you. In reality we just don't know enough yet to have a valid opinion.
Let's be clear. I'm not part of the debate about this plant.Read more
Clinical Trial Overview
Clinical Trial Finder
If you have diabetes and are overweight, you can have silent liver disease too
Learn about fatty liver disease and NASH, and see if you may qualify for a clinical trial.
If you have diabetes or struggle with your weight, you may have fatty liver disease. A severe form of fatty liver disease, called nonalcoholic steatohepatitis (NASH), often has no symptoms but can cause significant damage to your liver if not diagnosed early.
About the Clinical Trial
The MK-3655 Clinical Trial is evaluating the safety and effectiveness of MK-3655, an investigational medication for people with NASH. This trial will test MK-3655 compared to placebo. A placebo looks like the study medication but contains no active ingredient.
You may be able to participate if you: *
- Are a male or postmenopausal female, 18 to 80 years of age [in Japan: 20 to 80 years of age]
- Have NASH confirmed by a liver biopsy
- Do not have type 2 diabetes OR have type 2 diabetes that is well controlled by diet or a stable dose of diabetes medication
- Have had a stable weight for at least 3 months
If you qualify and decide to participate:
- Your liver and your overall health will be monitored closely by an experienced study team
- You will receive the investigational medication and study-related doctor visits at no charge
- The information gathered may help advance medical knowledge about NASH and may improve patient care in the future
- Participation is voluntary and you are free to withdraw from the study at any time. Your privacy will be maintained throughout the clinical trial
To learn more, including the possible risks and benefits of participation, visit NASH3655Study.com.
For a copy of this information, you can download this flyer.
*There may be additional requirements to participate. The study doctor can provide you with more information. Additional potential risks and benefits will be fully described to you by your study team.
Since you are on my mailing list you know about NASH, unlike most of the people. We had the 2019 version of NASHday on the 12th and as I think about how that event went I am struck by the fact that as a health outreach it was unusual.
I'll explain why but first, the punchline, NASHday was about people's lives and not about money.
We have every kind of "DAY" that you can think of. Every cause has a day or a month, some peg to hang the cause on and to focus attention. Just as an example, these are the top five unofficial holidays according to toptenz.net.
1. Black Day.
2. Autistic Pride Day.
3. International Free Hugs Day.
4. Monkey Day.
5. Record Store Day.
This page loads slowly. It is a series of videos about NASH, be patient if you are interested in a good explanation of this disease.
About one million Americans have cirrhosis and don't know it. When they are told "You have cirrhosis, I'm sorry but we have no treatment", the future that they imagined lay before them dies. It is, in a very real way, a death of self.
We all know that we will one day die but we hold a sense of how we think or hope our future will unfold. There is a continuity that flows with the preceding events in our lives as a single journey. If you have no warning, as so many liver disease patients do not, and your first information is that you have cirrhosis, a probably terminal illness, the self that you have known dies. The life you thought you were living no longer exists and a new unbidden and unwanted future is before you and you must find a way to reconcile yourself with that new reality.Read more