SUNN STUDY
Screening for Undiagnosed NAFLD and NASH
Here are links to tools and services that may be of value to you if you are a patient interested in support and information. You can access three free resources from this page.
- Free 21 DAY KICKSTARTER program which will introduce you to a plant based diet. The basic information is vegan, but everyone must approach their diet in their own way. If you do this it will give you a very good understanding of the things that you can make part of a healthy diet.
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- Clinical trials are the key to finding any therapy for disease. If you would like to investigate clinical trials the link to our FREE CLINICAL TRIAL FINDER will get you started.
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- For patients of all kinds, it is important to know that you are not alone. The free patient forum LIVING WITH FATTY LIVER AND NASH, will connect you with other people dealing with similar health issues.
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If you would like to see the official clinical trial document, here is a link to it
SUNN -- Screening for NAFLD and NASH
Fatty Liver Foundation Announces Completion of the Recruitment Phase of SUNN Study (Screening for Undiagnosed NAFLD and NASH)
“Completing recruitment for this proof-of-concept study is another important step forward for FLF’s ongoing community outreach, education and advocacy efforts toward proactive screening for advancing liver disease among at-risk populations for NAFLD and NASH,” commented Wayne Eskridge, FLF’s Co-Founder and Chief Executive Officer.
An estimated 100 million Americans have NAFLD, or its more serious form NASH. Despite the significant morbidity associated with NAFLD and NASH, currently there are no global consensus guidelines to screen for liver fibrosis in at-risk individuals, including people older than 50 years with type 2 diabetes or metabolic syndrome. The medical standard of care for asymptomatic liver disease is to not actively look for the condition. As a society we do not try to screen for advancing liver disease. This practice commonly results in the first time a patient hears about NASH is being told they have cirrhosis or end stage liver disease. As a patient-led education and advocacy organization, FLF believes the current policy is incorrect.
“We believe it is just wrong to allow a patient become terminally ill before telling them about their liver disease,” said Neeraj Mistry, MD, MPH, FLF’s Chief Medical Officer. “There are no drugs to treat liver disease so doctors don’t look for it, but there are things people can do to avoid cirrhosis. Sadly, while we speak of wellness as a goal, without a pill, we don’t promote liver health.”
The SUNN study is a clinical trial sponsored by patients to develop data to argue for proactive screening for advancing liver disease. FLF aims to give visibility to, and to amplify the voices of people with NAFLD and NASH. FLF’s goal is to play a fundamental role in shaping the scientific, educational, and public health response to NAFLD and NASH by advocating and championing a patient-centric approach to improving the identification, diagnosis, treatment and support of people with NAFLD and NASH.
SUNN Study
SUNN STUDY
Screening for Undiagnosed NAFLD and NASH
To see the official clinical trial record click this link
Here are links to tools and services that may be of value to you if you are a patient interested in support and information. You can access three free resources from this page.
- Free 21 DAY KICKSTARTER program which will introduce you to a plant based diet. The basic information is vegan, but everyone must approach their diet in their own way. If you do this it will give you a very good understanding of the things that you can make part of a healthy diet.
- --------
- Clinical trials are the key to finding any therapy for disease. If you would like to investigate clinical trials the link to our FREE CLINICAL TRIAL FINDER will get you started.
- --------
- For patients of all kinds, it is important to know that you are not alone. The free patient forum LIVING WITH FATTY LIVER AND NASH, will connect you with other people dealing with similar health issues.
- --------
Do you remember your first time?
There are some benefits to being an advocate. Sometimes you get to be first. We just finished training and certifying our staff to do FibroScan tests. As part of that I got to be the first one tested. Getting to this point has been a long journey, about 9 months, so a birth of sorts though happily a painless one. Everyone shows off baby pictures, here is beauty for anyone who hasn't seen a FibroScan report. This is my new scan. Click on it if you'd like to see the full size view.
Although this note is about our screening project, it is also an opportunity to reinforce our view that with lifestyle changes it can be possible to improve liver health, even for a cirrhosis patient.
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