Posted by admin for anonymous 

My "team" 

Oncologist, Gastroenterologist, Neurologist, Urologist, Neuro surgeon, Primary Care Provider, Renal Specialist, Genetic Counselor, Mental Health Counselor, Orthopedic Surgeon, Cardiologist, Neuroopthamologist, Physical Therapist, Nutritionist,

I'm fairly certain fewer than 2 of these doctors know my first name

I also know that they do not communicate with each other. This is a stupidly long list of specialists each only addressing one issue 

My problem is getting any of them to consider the multiple symptoms and adress them collectively. For instance, could there be one thing causing all these things to happen?

I'm just feeling overwhelmed and frustrated with diagnostics and labs and procedures and automated calls from clinics and pharmacists and appointments overlapping and I'm beginning to question whether all this is even necessary 

Like how does it benefit me? Is it going to improve my condition? Better my quality of life?

Is it even worth it ? 

Spending all these days that I can manage to get up going to appointments and stressing out?  Maybe I should take some time to enjoy my life a little bit before I get too sick to ever enjoy anything ...

I'm exhausted Mentally and physically This routine is making me unhappy 

I'm normally fairly cheerful but now I'm just miserable 

I hate my life 

I feel like I'm wasting it 

Every appointment brings more tests and more appointments, I'm sorry to be so complainy 

I try not to complain to my friends because I'm afraid they'll stop coming around 

I just need to unload every once in a while. Thanks for allowing me a place to do it